With more than 1,200 participants registered in its first four months, iCureCeliac™ is shaping the type of research that is most important to you – the patient. We are pleased to present a few initial findings.
It is a commonly held belief that, in America, celiac disease occurs most frequently in women of Caucasian descent. A recent study, led CDF Research Committee member Benjamin Lebwohl of the Celiac Disease Center at Columbia University, sought to examine that assertion, and turned up some unexpected information about the ethnic distribution of this widespread […]
Digestive Disease Week® (DDW) is the largest international gathering of physicians, researchers, and academics in the fields of gastroenterology. CDF curates the latest research on celiac disease.
Until there is a cure, patients who develop and are diagnosed with celiac disease as children will have to manage their disease for the rest of their lives. We all know how difficult the transition to adulthood can be for otherwise healthy children. For children with a chronic disorder that is self-managed through lifelong nutrition […]
Thank you to our more than 1,000 iCureCeliac participants for your amazing commitment to help researchers advance treatments and a cure for celiac disease and gluten sensitivity. We want to hear your concerns about arsenic in your diet, and give you the opportunity to tell us what studies you think should be done.
Gastroenterologists often play an important role in the diagnosis and treatment of celiac disease. The 2015 article, Celiac Disease: Ten Things Every Gastroenterologist Should Know, co-written by Joseph Murray, MD, member of Celiac Disease Foundation’s Medical Advisory Board, gives an outline of questions your gastroenterologist should feel comfortable answering and what you should be aware […]
Currently, the only treatment for a patient diagnosed with celiac disease is a strict gluten-free diet for life. Maintaining a diet completely free of gluten can be very costly and challenging. Many patients’ intestines don’t heal completely while on a gluten-free diet, because of issues with cross-contact with, and an inability to find, strictly gluten-free […]
On February 1, 2016, the Effective Health Care (EHC) Program at the Agency for Healthcare Research and Quality (AHRQ) released its first-ever evidence review on Diagnosis of Celiac Disease. AHRQ is a government agency tasked with producing evidence to improve the quality of healthcare while working with partners to ensure that the evidence is understood and used. […]
In keeping with our mission to advance research by leveraging technology, Celiac Disease Foundation is pleased to announce the February launch of iCureCeliac, a patient-powered research network (PPRN). At iCureCeliac, people living with celiac disease and gluten sensitivity can help facilitate new treatments and a cure by safely and securely contributing their health information online. Patients will also be […]
Training program for patients and caregivers will be offered at Celiac Disease Foundation’s National Conference April 30, 2016. In 2016, Celiac Disease Foundation (CDF) continues to push researchers to investigate what is most important to patients when it comes to celiac disease potential treatments and cures. An award from the Patient-Centered Outcomes Research Institute (PCORI) […]