Marilyn’s Message

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Marilyn’s Message May 2016

Marilyn Geller

Thank you to our more than 1,000 iCureCeliac participants for your amazing commitment to help researchers advance treatments and a cure for celiac disease and gluten sensitivity. I am pleased to share with you that we already have two research studies in place! The first is with Celimmune who is sponsoring clinical trials to test a drug […]

Marilyn’s Message March 29, 2016

Marilyn Geller

There is a growing understanding in the celiac disease community and among the medical professionals who treat the disease that the presence of celiac disease and its many symptoms can adversely impact a patient’s mental health. This can be particularly traumatic for young people. My son, for example, suffered from severe depression before he was […]

Marilyn’s Message March 7, 2016

Marilyn Geller

As part of our agenda to dramatically advance celiac disease research in 2016 and beyond, Celiac Disease Foundation has launched iCureCeliac, a massive patient registry database that promises to shorten the timeframe and lower the cost of developing life-enhancing treatments and a cure for celiac disease. The iCureCeliac database of patient-contributed and patient-controlled data will, for […]

Marilyn’s Message February 2016

Marilyn Geller

Celiac disease and gluten sensitivity research are desperately underfunded around the world, especially here in the United States. The National Institutes of Health’s Estimates of Funding for Various Research, Condition and Disease Categories has 250+ line items. Celiac disease is not among them. This lack of funding by government and private sources is the primary […]

Marilyn’s Message January 2016

Marilyn Geller

Thank you for making our 2015 Gift of Hope campaign a tremendous success! As you know, our goal was $100,000. As of yesterday, our fundraising total had reached $137,000. The average gift for the 2015 Gift of Hope Challenge was almost $200. With our generous Board of Directors Challenge Match of $0.50 for every dollar […]

Marilyn’s Message December 2015

Marilyn Geller

You have surely already received emails from Celiac Disease Foundation (CDF) that tell the stories of many in our community who are living with celiac disease. Some of these emails include videos that really capture the power and passion of the voices speaking about their disease. These emails are part of our annual year-end Gift […]

Marilyn’s Message November 2015

Marilyn Geller

Because the consequences can be so devastating and persistent, accidental exposure to gluten has always been a leading concern of the celiac disease community. I know from personal experience as the mother of a child with celiac disease that constant vigilance is often not enough. This is why Celiac Disease Foundation joined with other celiac disease advocacy […]

Marilyn’s Message October 2015

Marilyn Geller

For the past 25 years, Celiac Disease Foundation has fought tirelessly for the food industry to provide celiac disease patients, and those with gluten sensitivity, safe, abundant, and affordable dietary options. We were excited, therefore, that General Mills, our partner for many years in their gluten-free initiatives, asked us to share that one of America’s […]

Marilyn’s Message September 2015

Marilyn Geller

In a rare moment of bipartisan cooperation in Washington, D.C., the landmark 21st Century Cures legislation passed the U.S. House in early July by a vote of 344-77. The bill, co-authored by Republican Fred Upton and Democrat Diana DeGette, seeks to bring new drugs and treatments to market faster by encouraging medical innovation in research, […]

Marilyn’s Message August 2015

I have long supported walks and runs for charitable causes. In fact, before I became CEO of Celiac Disease Foundation, my son Henry and I participated in both the Los Angeles and Pasadena Marathon 5K Run/Walks to raise funds for Team Gluten-Free. I walked, Henry ran. This is probably why I was so moved when […]