For decades, Celiac Disease Foundation (CDF) has advocated for more widespread diagnostic testing for symptomatic celiac disease patients and their first-degree family members (parent, child, sibling) to ease much of the needless suffering caused by the disease.
At the March 9 and 10, 2017 Genetic Alliance Conference, Celiac Disease Foundation worked to determine best strategies to help grow our iCureCeliac® patient registry, and to encourage patients and their family members to engage in the research process to influence the future of celiac disease research toward treatments and a cure.
ImmusanT, a Cambridge, MA-based biotechnology company, has announced that Nexvax2®, an immunotherapy drug designed to protect celiac disease patients from gluten exposure, has successfully completed a Phase 1b clinical trial and is advancing to a Phase 2 trial. Currently, strict, lifetime adherence to a gluten-free diet is the only disease management protocol for celiac disease […]
In addition to improving treatments and finding a cure for celiac disease, iCureCeliac® is helping researchers appreciate the realities of living with celiac disease, helping to influencing what they choose to research and why.
To cure celiac disease we must fundamentally shift how celiac disease research is conceptualized and conducted. Why? Because the current research paradigm for celiac disease, one that has existed for four decades, has not delivered a cure. Not only has it not delivered a cure, celiac disease research has produced only a single approved treatment […]
With more than 1,200 participants registered in its first four months, iCureCeliac™ is shaping the type of research that is most important to you – the patient. We are pleased to present a few initial findings.
Celiac Disease Foundation is proud to announce the establishment of the CDF Research Committee, chaired by Daniel Adelman, MD, with members Sonia Kupfer, MD, Benjamin Lebwohl, MD, and Fernando Velayos, MD. Committee members will select two representatives from CDF’s Patient Engagement Celiac Disease Network to join them in overseeing CDF’s research-related activities, including iCureCeliac™. Research […]
Celimmune, in partnership with the University of Chicago Celiac Disease Center, and Celiac Disease Foundation have joined forces to deploy the iCureCeliac patient registry as a screen for phase 2 clinical study for refractory celiac disease type II. This is the first-ever use of the new and growing iCureCeliac registry to support celiac disease therapeutic treatment […]
Thank you to our more than 1,000 iCureCeliac participants for your amazing commitment to help researchers advance treatments and a cure for celiac disease and gluten sensitivity. We want to hear your concerns about arsenic in your diet, and give you the opportunity to tell us what studies you think should be done.
Celiac Disease Foundation (CDF) is pleased to announce a new partnership with Mosaic, a National Institutes of Health (NIH) project of the University of California at San Francisco (UCSF) to crowdsource research ideas online. CDF’s first Mosaic research topic is Arsenic in the Gluten-Free Diet. Arsenic is found in nature, and we are all exposed to […]