In 2013, Representative Tim Ryan (D-Ohio) introduced legislation that would apply gluten labeling requirements on all medications, both prescription and over-the-counter. We strongly endorsed this legislation when it was first introduced in 2013, but it never made it to a vote. This year, we pledge to re-double our efforts, along with other celiac disease organizations, […]
This year, the CDF Southern California Chapter has provided education on celiac disease and gluten sensitivity to more than 500 nurses in Southern California through the CDF School Nurse Awareness Program (SNAP). From February 12-14, 2015, Janelle Smith, RD, and Kris Ledesma, RN, attended the California School Nurse Organization Annual […]
CDF is committed to advancing the delivery of personalized health solutions emerging from the rapidly developing fields of genomics and data collection and analysis. We are a lead institutional participant in the Community Engaged Network for All (CENA), a ground-breaking initiative to create a massive national patient-driven cohort for disease research. The White House has launched […]
Celiac Disease Foundation Chief Executive Officer, Marilyn G. Geller, was recently appointed to sit on the Royal Caribbean Advisory Board on Disabilities. The Advisory Board held its first meeting in May 2015, and was established by the cruise line to improve the travel experience for guests with disabilities
On May 11, 2015, CDF CEO Marilyn G. Geller was proud to represent the celiac community at the public meeting of the U.S. Food and Drug Administration Functional GI Patient-Focused Drug Development Conference (PFDD) at FDA headquarters just outside of Washington, D.C. There are two issues we want to highlight about CDF’s presence at this […]
On May 11, 2015, the Food and Drug Administration (FDA) will conduct a public meeting on Functional GI Disorders Patient-Focused Drug Development. Celiac Disease Foundation was requested by the FDA to provide commentary about the impact of celiac disease on patients’ daily lives, the types of treatment benefit that matter most to patients, and patients’ […]
CDF CEO, Marilyn Geller, will present the celiac patient voice at the May 11 FDA Patient-Focused Drug Development meeting. Have your voice be heard. Complete the CDF Celiac PFDD Survey now.
Celiac Disease Foundation Chief Executive Officer, Marilyn Geller, attended The State of Autoimmune Disease: A National Summit at the National Press Club in Washington, D.C. The Summit explored the current trends in diagnosis, treatment, and therapies, presented by experts in research, environment, advocacy, and patient issues.
On March 30-31st, 2015, Celiac Disease Foundation Chief Executive Officer, Marilyn G. Geller, attended the FDA Public Workshop on Gastroenterology Regulatory Endpoints and the Advancement of Therapeutics (GREAT3) near Washington, D.C. This landmark conference addressed endpoints and outcome measures for trials for products intended to treat celiac disease and Irritable Bowel Disease. The second day […]
Celiac Disease Foundation is pleased to announce our participation in the Autoimmune Research Network, known as ARNet. ARNet is a network of autoimmune disease advocacy organizations that will foster research into celiac disease and related autoimmune conditions. In consonance with CDF’s Strategic Plan to increase national awareness of the ramifications of undiagnosed celiac disease, the first goal of […]