Senators Lindsey Graham (R-SC), Bill Cassidy (R-LA), Dean Heller (R-NV), and Ron Johnson (R-WI) recently introduced legislation known as Graham-Cassidy to repeal and replace the Affordable Care Act (ACA). The hope of these lawmakers is to hold yet another vote on repeal before October 1st, so a simple majority (51 votes) is all that is […]
On September 18, 2017, Celiac Disease Foundation (CDF) representatives attended a Food and Drug Administration (FDA) meeting in White Oak, MD on the ongoing implementation of a benefit-risk framework to inform drug and medical device review and approval processes. Under legislative mandate, the FDA is seeking to formally incorporate the patient experience and perspective into […]
What happens now to the Affordable Care Act (ACA)? Three factors are coming together to threaten American healthcare right now: The failure of the U.S. Congress to pass legislation to either “repeal or replace” the Affordable Care Act. Actions and threats from the Trump Administration to undermine basic pillars of the ACA. Clear weaknesses in […]
The pharmaceutical industry, the Food and Drug Administration, and disease advocacy organizations like Celiac Disease Foundation (CDF) are all seeking meaningful patient engagement in the drug research and development process. There is considerable evidence that when patients are active participants in disease research, the drug development process is not only more cost and time efficient, […]
The U.S. Senate is currently deciding how to handle healthcare reform and potentially crafting legislation to “repeal and replace” or otherwise modify the Affordable Care Act (ACA). Celiac Disease Foundation’s Legislative Action Center empowers you, your family, and your friends to quickly and easily contact your elected Representatives and Senators about issues of concern to […]
Contact your Members of Congress and urge them to protect the Medicaid program. Celiac Disease Foundation is proud to join with the Modern Medicaid Alliance on their Medicaid Works campaign to help ensure that Americans can get affordable access to care. The Modern Medicaid Alliance is a group of organizations, grassroots advocates, and Medicaid beneficiaries […]
The March 19, 2017 Summit brought patients and consumer advocates together with guideline developers, methodologists, and other stakeholders in the clinical guideline enterprise for the purpose of constructive dialogue and initiation of durable relationships between them.
At the March 5 and 6, 2017 Digestive Disease National Coalition Public Policy Forum, Celiac Disease Foundation, together with representatives from digestive disease organizations across the United States, developed common agendas to influence healthcare policy.
Patients with chronic diseases and their caregivers are demanding that any new health plan that emerges from Congress retains specific patient protections, including prohibiting pre-existing condition discrimination.
Celiac Disease Foundation has launched a new Legislative Action Center to empower you, your family, and your friends to quickly and easily contact your elected Representatives about issues of concern to the celiac disease and non-celiac wheat/gluten sensitive community. We are urging you to use the Legislative Action Center right now to demand that your […]