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CDF Presents Patient Advocacy Program Live at the Center for Celiac Research and Treatment 20th Anniversary Celebration and Symposium

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On November 4, 2016, Celiac Disease Foundation was invited to present a live session of the Celiac Disease Patient Advocacy Program at the Center for Celiac Research and Treatment 20th Anniversary Celebration and Symposium at Massachusetts General Hospital. CDF CEO, Marilyn Geller, and Communications Manager, Talia Hassid, educated a packed room of people about patient-centered […]

Become a Celiac Disease Patient Advocate

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Are you living with celiac disease or caring for someone with celiac disease? Do you want to help design and evaluate celiac disease research? Then we need you! Celiac Disease Foundation is proud to introduce our live and self-serve Patient Advocacy Program, which was launched at our National Conference on April 30, 2016. Researchers are […]

CDF Secures Co-Sponsor for H.R. 3648: Gluten in Medicine Disclosure Act

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After a long fight, in 2014 the FDA finally implemented regulations for the labeling of gluten-free foods. In 2012, Representative Tim Ryan (D-Ohio) introduced legislation that would require that gluten be identified on all medication labels, both prescription and over-the-counter. Celiac Disease Foundation (CDF) strongly endorsed this legislation when it was first introduced in 2012, but […]

CDF Urges Rapid Confirmation of Dr. Robert Califf as Head of FDA

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CDF has joined with a coalition of disease advocacy organizations led by FasterCures in urging the U.S. Senate to quickly confirm Dr. Robert Califf as the new Commissioner of the U.S. Food and Drug Administration. We have focused considerable resources in recent years on making the voice of the celiac disease community heard among decision makers in Washington, […]

CDF Attends Digestive Disease National Coalition Public Policy Forum in Washington, D.C.

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On October 27-28th, 2015, Talia Hassid, Celiac Disease Foundation’s Community Coordinator, attended the Digestive Disease National Coalition Public Policy Forum held in Washington, D.C.  The forum gathers representatives from digestive disease organizations across the U.S. together to arrive at a common agenda to influence healthcare policy in the United States. Talia met with Members of Congress and […]

CDF Joins With Teal Pumpkin Project to Raise Awareness of Celiac Disease and Food Allergies

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Celiac Disease Foundation is pleased to announce its pledge of support for the Teal Pumpkin Project™, an international initiative that promotes safety, inclusion, and respect of individuals managing food allergies by encouraging households to display a teal pumpkin and provide non-food treats for trick-or-treaters. The Teal Pumpkin Project™ launched as an international campaign last year […]

CDF Endorses “Gluten in Medicine Identification Act”

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In 2013, Representative Tim Ryan (D-Ohio) introduced legislation that would apply gluten labeling requirements on all medications, both prescription and over-the-counter. We strongly endorsed this legislation when it was first introduced in 2013, but it never made it to a vote. This year, we pledge to re-double our efforts, along with other celiac disease organizations, […]