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The Celiac Disease Foundation Submits Comment to the Centers for Medicare and Medicaid Services on Proposed Rule: Short-Term, Limited Duration Insurance

On February 21, 2018, the Centers for Medicare and Medicaid Services (CMS) released a proposed rule to modify the definition of short-term, limited duration insurance to exclude it from individual health insurance coverage. Short-term, limited duration plans (STLDPs) are not required to meet Affordable Care Act (ACA) requirements, as they are currently only intended for […]

The Celiac Disease Foundation Signs Community Letter in Support of Nonpartisanship

Maintaining political nonpartisanship is an essential component of all 501(c)(3) organizations, including religious congregations, charitable nonprofits, and foundations. Per the IRS tax code, in exchange for their tax-exempt status and the ability to receive tax-deductible contributions, 501(c)(3) organizations agree to not engage in “any political campaign on behalf of (or in opposition to) any candidate […]

National Coalition of Autoimmune Patient Groups Meeting Encourages Collaboration Between Autoimmune Patient Organizations

The Celiac Disease Foundation is committed to representing the celiac disease patient voice in policy and healthcare reform, and can better do so alongside strong allies with common goals. To this end, on March 20, 2018, Alana Broe, Legislative Analyst for the Celiac Disease Foundation, attended the National Coalition of Autoimmune Patient Groups (NCAPG) meeting. […]

Digestive Disease National Coalition Public Policy Forum Advocates for Increased Funding for the National Institutes of Health

As part of the Celiac Disease Foundation’s expanding effort to give voice to the celiac disease community in important areas of healthcare policy and federal funding for disease research, Laura Boone, Celiac Disease Foundation Development Manager and Alana Broe, Celiac Disease Foundation Legislative Analyst, attended the Digestive Disease National Coalition (DDNC) Public Policy Forum held […]

National Health Council Conference Emphasizes Importance of Patient Voice in Quality Measures

In an effort to give voice to the celiac disease community in important areas of healthcare reform, on February 15, 2018, Alana Broe, the Celiac Disease Foundation’s Legislative Analyst, attended the National Health Council (NHC) Conference: Ensuring the Patient Voice in Quality. This educational program connected patients, disease advocacy organizations, and quality measuring organizations to […]

The Celiac Disease Foundation Submits Comment to FDA on Draft Guidance Regarding Gluten in Medications

On December 12, 2017, the Food & Drug Administration (FDA) issued guidance to drug manufacturers to voluntarily label medications that do not contain gluten with the following statement: “Contains no ingredient made from a gluten-containing grain (wheat, barley, or rye).” The FDA granted a 60 day period to submit comments and suggestions regarding this draft […]

How Will New FDA Strategies to Evaluate Benefits vs. Risks Impact Drug Development and Approval for Celiac Disease, Non-Celiac Gluten/Wheat Sensitivity, and Their Comorbidities?

On September 18, 2017, Celiac Disease Foundation (CDF) representatives attended a Food and Drug Administration (FDA) meeting in White Oak, MD on the ongoing implementation of a benefit-risk framework to inform drug and medical device review and approval processes. Under legislative mandate, the FDA is seeking to formally incorporate the patient experience and perspective into […]