Advocate

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National Health Council Conference Focuses on Good Practices for Patient Engagement in Research

The pharmaceutical industry, the Food and Drug Administration, and disease advocacy organizations like Celiac Disease Foundation (CDF) are all seeking meaningful patient engagement in the drug research and development process. There is considerable evidence that when patients are active participants in disease research, the drug development process is not only more cost and time efficient, […]

Celiac Disease Foundation Urges You to Contact Your Senators to Ask Them to Support Critical Patient Protections During Senate Healthcare Reform Effort

The U.S. Senate is currently deciding how to handle healthcare reform and potentially crafting legislation to “repeal and replace” or otherwise modify the Affordable Care Act (ACA). Celiac Disease Foundation’s Legislative Action Center empowers you, your family, and your friends to quickly and easily contact your elected Representatives and Senators about issues of concern to […]

Medicaid Works Campaign Launched to Ensure Access to Care

Contact your Members of Congress and urge them to protect the Medicaid program. Celiac Disease Foundation is proud to join with the Modern Medicaid Alliance on their Medicaid Works campaign to help ensure that Americans can get affordable access to care. The Modern Medicaid Alliance is a group of organizations, grassroots advocates, and Medicaid beneficiaries […]

Celiac Disease Foundation Urges You to Contact Your Representatives About Preserving Critical Affordable Care Act Patient Protections

Celiac Disease Foundation has launched a new Legislative Action Center to empower you, your family, and your friends to quickly and easily contact your elected Representatives about issues of concern to the celiac disease and non-celiac wheat/gluten sensitive community. We are urging you to use the Legislative Action Center right now to demand that your […]

CDF Presents Patient Advocacy Program Live at the Center for Celiac Research and Treatment 20th Anniversary Celebration and Symposium

On November 4, 2016, Celiac Disease Foundation was invited to present a live session of the Celiac Disease Patient Advocacy Program at the Center for Celiac Research and Treatment 20th Anniversary Celebration and Symposium at Massachusetts General Hospital. CDF CEO, Marilyn Geller, and Communications Manager, Talia Hassid, educated a packed room of people about patient-centered […]

Become a Celiac Disease Patient Advocate

Are you living with celiac disease or caring for someone with celiac disease? Do you want to help design and evaluate celiac disease research? Then we need you! Celiac Disease Foundation is proud to introduce our live and self-serve Patient Advocacy Program, which was launched at our National Conference on April 30, 2016. Researchers are […]

CDF Secures Co-Sponsor for H.R. 3648: Gluten in Medicine Disclosure Act

After a long fight, in 2014 the FDA finally implemented regulations for the labeling of gluten-free foods. In 2012, Representative Tim Ryan (D-Ohio) introduced legislation that would require that gluten be identified on all medication labels, both prescription and over-the-counter. Celiac Disease Foundation (CDF) strongly endorsed this legislation when it was first introduced in 2012, but […]