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How Will New FDA Strategies to Evaluate Benefits vs. Risks Impact Drug Development and Approval for Celiac Disease, Non-Celiac Gluten/Wheat Sensitivity, and Their Comorbidities?

On September 18, 2017, Celiac Disease Foundation (CDF) representatives attended a Food and Drug Administration (FDA) meeting in White Oak, MD on the ongoing implementation of a benefit-risk framework to inform drug and medical device review and approval processes. Under legislative mandate, the FDA is seeking to formally incorporate the patient experience and perspective into […]

Lobbying for Healthcare Reform

What happens now to the Affordable Care Act (ACA)? Three factors are coming together to threaten American healthcare right now: The failure of the U.S. Congress to pass legislation to either “repeal or replace” the Affordable Care Act. Actions and threats from the Trump Administration to undermine basic pillars of the ACA. Clear weaknesses in […]

National Health Council Conference Focuses on Good Practices for Patient Engagement in Research

The pharmaceutical industry, the Food and Drug Administration, and disease advocacy organizations like Celiac Disease Foundation (CDF) are all seeking meaningful patient engagement in the drug research and development process. There is considerable evidence that when patients are active participants in disease research, the drug development process is not only more cost and time efficient, […]

Celiac Disease Foundation Urges You to Contact Your Senators to Ask Them to Support Critical Patient Protections During Senate Healthcare Reform Effort

The U.S. Senate is currently deciding how to handle healthcare reform and potentially crafting legislation to “repeal and replace” or otherwise modify the Affordable Care Act (ACA). Celiac Disease Foundation’s Legislative Action Center empowers you, your family, and your friends to quickly and easily contact your elected Representatives and Senators about issues of concern to […]

Medicaid Works Campaign Launched to Ensure Access to Care

Contact your Members of Congress and urge them to protect the Medicaid program. Celiac Disease Foundation is proud to join with the Modern Medicaid Alliance on their Medicaid Works campaign to help ensure that Americans can get affordable access to care. The Modern Medicaid Alliance is a group of organizations, grassroots advocates, and Medicaid beneficiaries […]

Celiac Disease Foundation Urges You to Contact Your Representatives About Preserving Critical Affordable Care Act Patient Protections

Celiac Disease Foundation has launched a new Legislative Action Center to empower you, your family, and your friends to quickly and easily contact your elected Representatives about issues of concern to the celiac disease and non-celiac wheat/gluten sensitive community. We are urging you to use the Legislative Action Center right now to demand that your […]

CDF Presents Patient Advocacy Program Live at the Center for Celiac Research and Treatment 20th Anniversary Celebration and Symposium

On November 4, 2016, Celiac Disease Foundation was invited to present a live session of the Celiac Disease Patient Advocacy Program at the Center for Celiac Research and Treatment 20th Anniversary Celebration and Symposium at Massachusetts General Hospital. CDF CEO, Marilyn Geller, and Communications Manager, Talia Hassid, educated a packed room of people about patient-centered […]