Archive by Author

Marilyn’s Message April 2017

Marilyn Geller

In honor of May Celiac Awareness Month, Celiac Disease Foundation (CDF) and the Gluten Intolerance Group (GIG) are proud to announce a partnership that will improve the health and well-being of the celiac disease and gluten-free communities. In order to create the most comprehensive nonprofit source of education, research, advocacy, social networking, and support for […]

Marilyn’s Message February 2017

Marilyn Geller

Celiac disease research is desperately underfunded. The primary reason that celiac disease research has historically been underfunded relative to other diseases with similar population prevalence and impact is the assumption that lifetime adherence to a strict, gluten-free diet effectively manages the disease. We know now that this assumption is definitely not true for many in our community… and may not […]

Marilyn’s Message January 2017

Marilyn Geller

Elaine Monarch founded Celiac Disease Foundation to give voice to the millions of celiac disease sufferers who were being systematically ignored by doctors, medical researchers, and our government.  A major part of our work over the last 30 years has been advocacy, including a successful campaign to secure gluten-free labeling regulations. Today, I am writing to […]

Gluten-Free Diet Does Not Heal Intestinal Damage in 20% of Children With Celiac Disease

A study published November 3, 2016 in the Journal of Pediatric Gastroenterology, found that nearly 20% of children with celiac disease continued to show intestinal damage, despite adhering to a gluten-free diet for one year or more. The study, conducted by researchers at the Celiac Research Program at Harvard Medical School, sought to assess the accuracy […]

Marilyn’s Message December 2016

Marilyn Geller

2016 has been another milestone year for Celiac Disease Foundation. We began the year launching the revolutionary iCureCeliac® patient registry, the cornerstone of a systematic and cooperative approach between academia, private industry, and patient advocates to apply the principals of precision medicine to developing treatments and a cure for celiac disease. Over the course of […]

Marilyn’s Message October 2016

Marilyn Geller

This month, Celiac Disease Foundation launched the Pediatric and Adult Celiac Disease Follow-up Checklists. Based upon recommendations from the world’s leading medical experts, the Follow-Up Checklists specify best practices in post-diagnosis celiac disease management to assure optimal patient care.

Best Practices in Pediatric Celiac Disease Management

A team of pediatric medical experts convened at the Children’s National Health Center in Washington, D.C. in January 2013 with a single, ambitious goal – to cull from over 40 years of publications and studies relating to celiac disease in children, a list of best practices for the diagnosis, treatment, and management of this potentially […]