Archive by Author

Marilyn’s Message February 2017

Marilyn Geller

Celiac disease research is desperately underfunded. The primary reason that celiac disease research has historically been underfunded relative to other diseases with similar population prevalence and impact is the assumption that lifetime adherence to a strict, gluten-free diet effectively manages the disease. We know now that this assumption is definitely not true for many in our community… and may not […]

Marilyn’s Message January 2017

Marilyn Geller

Elaine Monarch founded Celiac Disease Foundation to give voice to the millions of celiac disease sufferers who were being systematically ignored by doctors, medical researchers, and our government.  A major part of our work over the last 30 years has been advocacy, including a successful campaign to secure gluten-free labeling regulations. Today, I am writing to […]

Gluten-Free Diet Does Not Heal Intestinal Damage in 20% of Children With Celiac Disease

A study published November 3, 2016 in the Journal of Pediatric Gastroenterology, found that nearly 20% of children with celiac disease continued to show intestinal damage, despite adhering to a gluten-free diet for one year or more. The study, conducted by researchers at the Celiac Research Program at Harvard Medical School, sought to assess the accuracy […]

Marilyn’s Message December 2016

Marilyn Geller

2016 has been another milestone year for Celiac Disease Foundation. We began the year launching the revolutionary iCureCeliac® patient registry, the cornerstone of a systematic and cooperative approach between academia, private industry, and patient advocates to apply the principals of precision medicine to developing treatments and a cure for celiac disease. Over the course of […]

Marilyn’s Message October 2016

Marilyn Geller

This month, Celiac Disease Foundation launched the Pediatric and Adult Celiac Disease Follow-up Checklists. Based upon recommendations from the world’s leading medical experts, the Follow-Up Checklists specify best practices in post-diagnosis celiac disease management to assure optimal patient care.

Best Practices in Pediatric Celiac Disease Management

A team of pediatric medical experts convened at the Children’s National Health Center in Washington, D.C. in January 2013 with a single, ambitious goal – to cull from over 40 years of publications and studies relating to celiac disease in children, a list of best practices for the diagnosis, treatment, and management of this potentially […]

Marilyn’s Message August 2016

Marilyn Geller

If you are a parent, you know how challenging the entire back-to-school process can be. Now, imagine that your child has celiac disease or non-celiac wheat sensitivity (NCWS). Currently, parents are confronting the reality of sending their gluten-free children back to school, and I know from experience just how intimidating and frustrating it can be. Our first […]

Finding A Cure For Celiac Disease

To cure celiac disease we must fundamentally shift how celiac disease research is conceptualized and conducted. Why? Because the current research paradigm for celiac disease, one that has existed for four decades, has not delivered a cure. Not only has it not delivered a cure, celiac disease research has produced only a single approved treatment […]

Marilyn’s Message June 2016

Marilyn Geller

Having a child diagnosed with a chronic autoimmune disease can be very scary. When Gabbi Saft was diagnosed with celiac disease, her parents, Warren and Amber, turned to the Celiac Disease Foundation (CDF) to begin researching the challenges that she would face. What they learned was that every time she had a school lunch, went […]