Archive by Author

Marilyn’s Message March 29, 2016

Marilyn Geller

There is a growing understanding in the celiac disease community and among the medical professionals who treat the disease that the presence of celiac disease and its many symptoms can adversely impact a patient’s mental health. This can be particularly traumatic for young people. My son, for example, suffered from severe depression before he was […]

Marilyn’s Message March 7, 2016

Marilyn Geller

As part of our agenda to dramatically advance celiac disease research in 2016 and beyond, Celiac Disease Foundation has launched iCureCeliac, a massive patient registry database that promises to shorten the timeframe and lower the cost of developing life-enhancing treatments and a cure for celiac disease. The iCureCeliac database of patient-contributed and patient-controlled data will, for […]

Marilyn’s Message February 2016

Marilyn Geller

Celiac disease and gluten sensitivity research are desperately underfunded around the world, especially here in the United States. The National Institutes of Health’s Estimates of Funding for Various Research, Condition and Disease Categories has 250+ line items. Celiac disease is not among them. This lack of funding by government and private sources is the primary […]

Meet Janelle Smith, Registered Dietitian Nutritionist

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Meet Janelle Smith, UCLA-educated Registered Dietitian Nutritionist and member of CDF’s Allied Health Committee. Janelle specializes in gastrointestinal symptom management through appropriate nutrition and food choices, helping you adapt to living on a gluten-free diet. As CDF’s resource to help our community live gluten-free, she is here to provide tips and tricks for Back to School, […]

CDF to Launch iCureCeliac Patient-Powered Research Network

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In keeping with our mission to advance research by leveraging technology, Celiac Disease Foundation is pleased to announce the February launch of iCureCeliac, a patient-powered research network (PPRN). At iCureCeliac, people living with celiac disease and gluten sensitivity can help facilitate new treatments and a cure by safely and securely contributing their health information online. Patients will also be […]

Marilyn’s Message January 2016

Marilyn Geller

Thank you for making our 2015 Gift of Hope campaign a tremendous success! As you know, our goal was $100,000. As of yesterday, our fundraising total had reached $137,000. The average gift for the 2015 Gift of Hope Challenge was almost $200. With our generous Board of Directors Challenge Match of $0.50 for every dollar […]

Become a Beta Tester for the Unified Celiac Disease Registry – Now Through January 15, 2016

Patient Registry

The UCDR allows users to report online the patient experience of living with celiac disease and other gluten-related disorders in order to further accelerate research into treatments and a cure. Be the first to share your skills to accelerate a cure for celiac disease. Contact ucdr@celiac.org to request an invitation and receive a CDF Team […]

Marilyn’s Message December 2015

Marilyn Geller

You have surely already received emails from Celiac Disease Foundation (CDF) that tell the stories of many in our community who are living with celiac disease. Some of these emails include videos that really capture the power and passion of the voices speaking about their disease. These emails are part of our annual year-end Gift […]

Celiac Disease Foundation Launches Young Investigator Awards in Partnership with the North American Society for the Study of Celiac Disease

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Celiac Disease Foundation has announced that it has partnered with the North American Society for the Study of Celiac Disease (NASSCD) to award a three-year, $150,000 grant to support young investigator research in celiac disease. This grant, which will begin with awards in 2016, will focus on finding cause and treatment for celiac disease sufferers.

Marilyn’s Message November 2015

Marilyn Geller

Because the consequences can be so devastating and persistent, accidental exposure to gluten has always been a leading concern of the celiac disease community. I know from personal experience as the mother of a child with celiac disease that constant vigilance is often not enough. This is why Celiac Disease Foundation joined with other celiac disease advocacy […]