Are you living with celiac disease or caring for someone with celiac disease? Do you want to help design and evaluate celiac disease research? Then we need you! Celiac Disease Foundation is proud to introduce our live and self-serve Patient Advocacy Program, which was launched at our National Conference on April 30, 2016. Researchers are looking to partner with trained patients. The national organization, Patient-Centered Outcomes Research Institute (PCORI), involves trained patients in evaluating their funding applications and as PCORI Ambassadors. The National Institutes of Health (NIH) also has opportunities for patient advocates to evaluate grant proposals. Additionally, CDF offers opportunities to serve on its Research Committee and on the steering committees of CDF-funded research projects.
The CDF Patient Advocacy Program teaches Patient Advocates about patient-centered outcomes research and how it has impacted our healthcare system. Participants learn about the latest in celiac disease research and interact with leading scientists in the field. Patient Advocates also learn about clinical and scientific research processes, how to ask research questions, and how to serve on research study committees. Through the CDF Patient Advocacy Program, Patient Advocates are provided with the knowledge and tools to feel confident, prepared, and ready to engage as active partners in the research process. This training will be replicated throughout the country live and online throughout 2016 and 2017.
Take the first step to becoming a Celiac Disease Patient Advocate by registering for our upcoming live webinar on October 6, 2016 at 9:00 am PT, featuring Janelle Smith, CDF Registered Dietitian, and Talia Hassid, CDF PCORI Principal Investigator. Learn more about the Patient Advocacy Program here.
Unable to join the live program? Click here to access our online program!