Marilyn’s Message January 2018

Marilyn Geller

“Fail faster” is a saying in drug research. In 2014, the Tufts Center for the Study of Drug Development estimated that the average cost of bringing a new drug through the development pipeline and Food and Drug Administration (FDA) approval process to market is $2.6 billion. More than 90 percent of all drugs being developed […]

New Testing Option for Possible Celiac Disease Sufferers

The current standard for a celiac disease diagnosis is a positive blood test for specific antibodies, followed by a biopsy of the intestine that reveals damage to the villi (villous atrophy). These tests are certainly invasive and unpleasant, but more than that, they are useless in cases where a patient is already following a gluten-free […]

How to Maintain a Gluten-Free Diet With Celiac Disease, As Featured in USA Today

The Celiac Disease Foundation (CDF) was featured in a recent article in Media Planet’s USA Today’s Digestive Health campaign, distributed within the December issue of USA Today. This campaign focuses on the future of personal health. CDF’s article, “How to Maintain a Gluten-Free Diet With Celiac Disease,” discusses the transition to a gluten-free diet and […]

How More Participation in Drug Trials Can Create Medical Breakthroughs, As Featured in USA Today

The Celiac Disease Foundation (CDF) works tirelessly year-round to advance research toward treatments and a cure. Access to patient data is necessary to better target treatments for those with celiac disease. In CDF’s recent article featured in the December 2017 issue of Media Planet’s Digestive Health campaign of USA Today, titled “How More Participation in […]

Marilyn’s Message December 2017

Marilyn Geller

As we begin this season of giving, I am proud to share with you the work that your gifts and support make possible. In our 2016-2017 Annual Report, you can learn about: iCureCeliac®, the nation’s only celiac disease patient registry, helping researchers to find new treatments and a cure for celiac disease Our Patient Advocacy […]

Podcast on Patient and Caregiver Participation in Celiac Disease Research

On November 15, 2017, Celiac Disease Foundation (CDF) Chief Executive Officer, Marilyn G. Geller, was a guest on the podcast of the Celiac Disease Program at Children’s National Health System. This podcast episode focused on the importance of participating in celiac disease research. We often hear about clinical trials and research in the news, but […]

The Celiac Disease Foundation 2017 Year in Review

Each year, the world’s leading experts representing every aspect of celiac disease research, education, and advocacy gather at the International Celiac Disease Symposium (ICDS). As you know, there are no approved treatments for celiac disease beyond strict adherence to the gluten-free diet. And, as you know, it is estimated that approximately 30% of all celiac […]

CDF Trains Patient Advocates in Celiac Disease Research at the University of Chicago

On October 21, 2017, the Celiac Disease Foundation (CDF) held a Patient Advocacy Program workshop at the University of Chicago Celiac Disease Center’s Annual Celiac Education Day.  Historically, medical research has not tapped the expertise of patients in the design and development of new treatments, often leading to disconnects between therapeutic outcomes and real patient […]