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CDF Supports NASSCD Comments on USPSTF Research Plan for Screening for Celiac Disease

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The Celiac Disease Foundation Medical Advisory Board, together with the National Board of Directors submitted a letter to the U.S. Preventive Services Task Force supporting the North American Society for the Study of Celiac Disease (NASSCD) comments on the Task Force’s draft research plan for screening for celiac disease. Among other comments, the NASSCD encouraged the USPSTF to focus on high risk individuals (those who are symptomatic, have associated diseases or a family history) in their research.

Marilyn’s Message September 2014

Marilyn Geller

One year ago, Celiac Disease Foundation introduced our School Nurse Awareness Plan (SNAP!) Back-to-School outreach campaign. Since then, with your generous support, our Chapters have educated more than 2,000 school nurses and health aides throughout the country in the diagnosis and treatment of celiac disease and gluten sensitivity. This fall, we are extending our Back-to-School campaign, at your request, to include outreach to physician offices. Through our Community Engagement Survey, you asked that CDF create a program to allow you to directly participate in educating our school health workers and our medical community about celiac disease. CDF now proudly presents the 2014 Back-to-School Advocacy Campaign where by making a gift or by ordering Patient Info Cards to put in your physician’s office, or a “Why Does My Stomach Hurt All the Time?” Poster for your school health office, you are helping thousands of children and their parents get the help they need to reach a timely diagnosis.

Back to School with Almonds – Nature’s Perfect Gluten-Free Snack

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Celiac Disease Foundation gratefully acknowledges The Almond Board of California for their support of the celiac and gluten-sensitive community, and for providing the following: If you’re reading this article, you most likely know someone – a child, close friend or other family member—with celiac disease, or perhaps have been diagnosed yourself. You also likely understand […]

Marilyn’s Message August 2014

Marilyn Geller

This month Celiac Disease Foundation launches the CDF Online Advocacy Program designed to empower the celiac community to advocate for our disease.  The Advocacy Program features CDF’s public policy priorities, tools and resources for taking action on both a national and local basis, a Legislative Action Center in partnership with the American Celiac Disease Alliance […]

Celiac Disease Foundation Launches Online Advocacy Program to Empower Celiac Community

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Affecting 1% of the population, celiac disease is one of the world’s most prevalent genetic autoimmune conditions.  In the United States, celiac disease is also one of the least diagnosed, with an estimated 2.5 million children and adults continuing to suffer needlessly.  Long-term health complications of undiagnosed celiac disease include cancers, coronary heart disease, osteoporosis, […]

Marilyn’s Message

Marilyn Geller

June has been a whirlwind of activity for the CDF National Office with the presenting of the 2014 National Conference & Gluten-Free EXPO in Pasadena, California.  In keeping with CDF’s mission of educating medical providers about celiac disease diagnosis and treatment, CDF kicked off the Conference weekend on Friday with Grand Rounds at Cedars-Sinai and […]

Marilyn’s Message May 2014

Marilyn Geller

May is Celiac Disease Awareness Month.  It is the month where we make an extra effort to let those outside our community know the statistics:  1 in 100 people worldwide have celiac disease; only 17% of people with celiac disease are diagnosed in the United States; 6-10 years is the average time to diagnosis in […]

Celiac Disease Foundation Celebrates May Celiac Awareness Month with 7 Day Gluten-Free Meal Plan and Team Gluten-Free Challenge

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Celiac Disease Foundation (CDF) today released a 7 Day Gluten-Free Meal Plan to help individuals diagnosed with celiac disease or other gluten-related disorders and their families ease the transition to a gluten-free diet. The gluten-free meal plan provides a clear and concise 7 day menu of three meals and two snacks per day with easy to make recipes and “Quick-Fix” options for those on-the-go. This free meal plan, developed with CDF Medical Advisory Board member, Alicia Calvo, RD, CDE, can be accessed at celiac.org/mealplan.

In honor of Celiac Awareness Month and to showcase the 7 Day Gluten-Free Meal Plan, CDF is encouraging celiac disease and gluten-sensitivity advocates to participate in its Team Gluten-Free Week without Wheat (Barley and Rye) Challenge. Participants will join CDF Board of Directors’ Treasurer Christopher Holland in committing to eating entirely gluten-free for at least 7 days in the month of May to raise funds and promote awareness of celiac disease and other gluten-related disorders.

Gluten-Free Community Unites at Celiac Disease Foundation National Conference

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Celiac Disease Foundation (CDF), the leading national organization improving the quality of life for all people affected by gluten-related disorders, today announced that over 3000 people are expected in Pasadena on June 7 – 8, 2014, for CDF’s 20th Annual National Conference & Gluten-Free EXPO. Patients, family members, caregivers, health care professionals and gluten-free foodies will converge at the Pasadena Convention Center for this educational and gluten-free experience. The June 7th conference focuses on medical information and updates on celiac disease, one of the world’s most prevalent and under diagnosed genetic autoimmune diseases. The June 8th EXPO celebrates food options now available for people with celiac disease, the gluten-sensitive and others who seek benefit of the gluten-free lifestyle. For many of the conference attendees, this is the first time in which they will be surrounded by a community of people living with celiac disease or gluten-sensitivity.