Celiac Disease Foundation drives diagnosis and treatment of celiac disease through advocacy, education, and advancing research to improve the quality of life for all people affected by gluten-related disorders.
We Are Here to Serve You
Celiac Disease Foundation (CDF) is a non-profit, public benefit corporation established in 1990 by Elaine Monarch to support the celiac disease community by funding important advocacy, education, and research initiatives. Today, under the guidance of a National Board of Directors and an internationally renowned Medical Advisory Board, the Foundation has grown to include a nationwide network of volunteers, a Chapters and Support Groups program, and full-time staff in Los Angeles, California. In order to further the mission, Celiac Disease Foundation ensures that people living with celiac disease and other gluten-related disorders receive accessible, evidence-based medical information and support services to help them live longer, healthier lives.
We Have Made Tremendous Strides
From sponsoring the first serology workshop, which led to today’s celiac disease blood test, serving on the planning committee for the landmark 2004 NIH Consensus Development Conference on Celiac Disease, to supporting clinical research, advocating on Capitol Hill for gluten-free labeling laws, partnering with mainstream manufacturers in creating today’s gluten-free marketplace, and offering the number one rated website for celiac disease, CDF has played a critical role in improving the lives of those afflicted and their loved ones. CDF’s annual National Conference and Gluten-Free EXPO is the largest national patient conference for celiac disease, with presentations and panel discussions with the world’s foremost celiac experts. CDF has an active network of Chapters and Support Groups delivering programs and services to the diagnosed and yet to be diagnosed. Our community fundraising program, CDF Team Gluten-Free, provides a simple way for athletes and non-athletes alike to raise awareness and funds for our programs for advocacy, education, and advancing research. We publish INSIGHT, a quarterly newsmagazine, as well as INBRIEF, a monthly e-newsletter dedicated to providing the latest information regarding research, advocacy, education, and the gluten-free lifestyle.
We Work Tirelessly to Increase Diagnosis
Affecting 1% of the population, celiac disease is one of the world’s most prevalent genetic autoimmune conditions. In the United States, celiac disease is also one of the least diagnosed, with an estimated 2.5 million children and adults continuing to suffer needlessly. Long term health complications of undiagnosed celiac disease include: cancers, coronary heart disease, osteoporosis, neurological deficits, anemia, and generalized poor quality of life. For every six people with celiac disease, only one in the U.S. is diagnosed. With vital programs and services for the public, patients, healthcare professionals and the food industries, CDF meets the growing public health challenge of diagnosing and treating celiac disease and other gluten-related disorders. CDF intends to drive the diagnosis rate to “one in five” within a year, “one in four” by the following year, and so on, until we assure that 100% of our celiac disease population is diagnosed.
We Maintain Strong Relationships and Connections
Celiac Disease Foundation collaborates with physicians, dietitians, mental health professionals and research institutions across the country to capitalize research output and further our mission to help improve the quality of life for all those affected by gluten-related disorders. CDF is a founding member of the American Celiac Disease Alliance (ACDA), and is actively involved with the National Institutes of Health (NIH), NIH Celiac Disease Awareness Program, National Digestive Diseases Information Clearinghouse (NDDIC), and the Food & Drug Administration (FDA) in the promotion of celiac disease and non-celiac gluten sensitivity concerns. CDF is a recognized member of Independent Charities of America (ICA), a nonprofit association of America’s best charities, and Health & Medical Research Charities of America (HMR), a nonprofit organization that pre-screens high quality national and international charities. CDF has received the GuideStar Exchange Gold participation level, a leading symbol of transparency and accountability provided by GuideStar USA, Inc., the premier source of nonprofit information.