CDF partnered with Quest Diagnostics and Olive View- UCLA Medical Center to launch a year-long study, “The Prevalence of Celiac Disease in a Primarily Hispanic Population.” The study evaluates the benefit of screening for celiac disease in symptomatic patients with the goal of raising awareness of the disease in the academic community and among physicians who treat patients in this population.
CDF invited the medical directors of the world’s leading biopharmaceutical companies focused on developing treatments for celiac disease to present at the 2013 CDF National Conference. Leaders from Alba Therapeutics, Alvine Pharmaceuticals, BioLineRx and ImmusanT presented their findings, encouraging the community of celiac disease patients to enroll in clinical trials to advance research.
CDF launched the nation’s most comprehensive online directory for patients to find reliable information on healthcare practitioners familiar with diagnosing and treating celiac disease and other gluten-related disorders.
CDF sponsored Grand Rounds at the Mayo Clinic Scottsdale with Medical Advisory Board Member Dr. Peter Green and at Olive View-UCLA Medical Center with Medical Advisory Board Member Dr. Joe Murray, educating 150 physicians to “Consider Celiac” in their patient evaluations.
CDF hosted the nation’s largest patient education conference, CDF 2013 National Conference and Gluten-Free EXPO, showcasing the latest in research, treatment and the gluten-free lifestyle to 3000 attendees.
CDF launched a robust, powerful and easily navigable new website at celiac.org, providing a trusted source for celiac disease and gluten-sensitivity research, diagnosis, treatment and support.
CDF’s INSIGHT, our quarterly newsmagazine, was made available in digital format for the first time reaching more than one million users of celiac.org.
CDF’s nationwide network continued to conduct its outreach into local communities to bring education and support programs to people affected by celiac disease, providing tools and resources needed to manage their health and maintain a good quality of life.
CDF is the leading voice for people with celiac disease, advocating for expanded investment in research and education on Capitol Hill. As a member of the American Autoimmune Related Diseases Association, Digestive Disease National Coalition and the National Coalition of Autoimmune Patient Groups, CDF lobbied congressional leaders for federal funding of celiac disease research and recognition of the month of May as National Celiac Awareness month.
As a member of the American Celiac Disease Alliance, CDF rallied its nationwide network of tens of thousands of celiac activists to petition the FDA to finalize its gluten-free labeling rule and to support the labeling of gluten in medication.
CDF aggressively conducted outreach efforts to increase public understanding of celiac disease through national public awareness campaigns, media appearances, and online and social marketing.